March 02, 2012


I posted on FB last night but will elaborate in the short time I have before my mystery field trip with David Thomas.  Yesterday I had my monthly Oncologist visit.  It went well.  My Kappa Free Light Chains are 28 down from 34.  This is great because it means that the Revlmid is controlling the growth of those bad cells. 
I talked with the doc about lowering the dose to a point where I do just a bit less suffering.  Ok, I'd settle for a lot less suffering.  As a result my new prescription is for 5mg a day which is considered a maintenance dose.  I am feeling super hopeful about this change.  Perhaps I'll be able to lead a more normal life while on this super low dose.
It is kind of silly but one of the things that I really hope for is that I'll be able to enjoy a beer.  With the amount of poison that I take right now, my taste buds have rebelled to the point where beer tastes really bad.  Of all the small and big things that this transition might change, my mind just keeps going to beer.  Is that a bad sign?

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